Jan 15

Psychological Distress in Arab/Muslim-American Parents of Children with Disabilities

I am posting this survey link, so some of you may participate and help reveal how some of the parents manage their day to day lives with a disabled child.

It is important to see the coping system of others, what we can improve or do entirely different. It will also help to tailor early intervention, as well as helping social workers and mental health care professionals to approach these parents in a better and more effective way.

It is absolutely confidential, and you may even win and iPad air for your participation.

Please take 15-20 minutes out of your busy schedule and help this good cause with your answers.

Here is the link for the survey. https://www.surveymonkey.com/s/ARABPARENTS

Aug 23

CDC and MMR Research

mmr statisticMany children regressed after vaccinations, or they got very sick with high temperature and showed autism symptoms afterward.

Parents asked numerous times to have this researched as they mourn the loss of their children. Not because they died, but they are lost in their own little world, and nothing can get through them.

The answers were always the same. CDC did all the investigations and the result is the same. vaccines are safe and it does not cause autism.

So why is that so many children have autism? What causes it? Why so many parents claim the same story, “after vaccination my child never been the same?” Independent researchers showed the link between increased vaccination aligned with increased autism, but they were told that they are wrong.

Now, I am not saying that vaccination is wrong,  we had vaccines before, but much less occurrence of autism. As a medical professional I always swore by preventing diseases, but not in a cost of my child’s health, don’t use my child as a guinea pig. There are many professionals who called for a new vaccination schedule to help the Child’s  immune system really form on its own  before it is bombarded with all the vaccines.

They were  all silenced, mocked, and some had their license removed. Parents had to resort to refuse vaccination risking of CPS getting involved,  state gain custody of their child, or had to lie and ask for religious exemption. Parents with children who regressed were  on their own. Either way, children and parents suffered and suffering as we speak from all the stress, physical and mental health problems that vaccine injure caused.

This debate about vaccine injury is going on for years, particularly the MMR vaccine. As I always said the truth will come out one way or another, sooner or later. Well it finally came later, many years later and tens and thousands of autistic children later, Dr. Thompson Senior Scientist of National Center of Birth Defects and Development Disabilities reveled how they buried information that support the theory of the link between MMR and autism rate.   According CNN ireport “Dr. Thompson has admitted the 340% increase in boys receiving the MMR vaccine “on time” as opposed to delayed was buried by himself, Dr. DeStefano, Dr. Bhasin, Dr. Yeargin-Allsopp, and Dr. Boyle.”

Listen to the following recording regards to his admittance of his wrong doing. You may fast forward to the beginning of the 2 minute, 45 second. As I am writing this article I am still not convinced that the link will be working when you click on it, as they always take down important revealing videos like this to protect the CDC’s image. To be honest in my eyes as much good they did I still don’t trust them anymore, and I know many others feel the same way.

Again I want to press the issue here to those who sometimes don’t ponder on what they read and jump into conclusion. This article is not about not vaccinating your child, it is rather shedding light on some corrupt professionals who keep the dollar signs in front of their eyes not the well-being of humanity.

Here is the link for CNN ireport, and the for the vimeo recording where Dr. Thompson revealed his wrongdoings.



Disturbing is an understatement. I just wonder how this will be swept under the rug, how it will be explained, what mental illness Dr Thomas has to say such a thing.

I wonder how these professionals can sleep at night knowing to wreak havoc millions of lives with a life long disability.




Aug 22

Reishi Mushroom for Amin

ReishiCapsAs many of you know, Amin not just having autism, but he is battling with lots of medical issues. Sadly every time he is sick he regress somewhat. There are times when his PANDAS flare up, and that is the time when I feel into a major desperation.

WE had been dealing with his Pandas for years and for about 5-6 years we have it once a year and it lasts for about 6 months.

The problem is that most doctors won’t acknowledge this diagnosis, and the very first time I didn’t know what I was dealing with either.That is when I started to search and research, and stumbled upon a possibility that Amin might have  Pandas.

The past 5 years I just dealt with it, using antibiotic, extra probiotic, and natural sleeping aid. Last year he got it so bad that I did not sleep for three months and only few minutes at a time while rocking him all night , he became my shadow and I could not go anywhere without him.

I attended a webinar where  Dr. Maya Shetreat-Klein explained how she treats her Pandas kids and in her practice what she saw that works well.

It was an eye opener to see that how many more moms and dads dealing with this silently, as the medical circle still does not want to acknowledge this condition. She mentioned several different things during her presentation, which some I used already during the time  Amin was having difficulties.

To be honest I resigned to the fact that nothing really will make any difference, and I just have to deal with this condition. Once she mentioned Reishi mushroom and its benefit, my attention spiked. So I started searching and researching again. To my  surprise this mushroom has been used for special needs kids for a long time for various reasons. To make me more happy, my research showed how it helps the immune system.

For the readers who don’t know me and my son, I always emphasized that I think his autism is due to medical problems. he was very healthy happy child, one day at 13 months of age he got all his shots in the morning, by the afternoon he got a very severe viral croup as they diagnosed him, high fever, and next day he was not the same little boy. From then on he coughs horrible most times, and he gets sick so much that I started to question myself as a mom.

So the Reishi mushroom capsules were ordered. We found someone who visited the USA, since I don’t live there right now, and we got it within 2 weeks. He started to take 2 capsules about 3 months ago and I upped it to 4. He tolerated it well, and he took it every day. After two months I got him on the blend and he is taking that now for over 3 wks. In this past 10 days everyone in the family had strep throat or viral throat infection. We were all sick, very sick including Amin. I looked for all the Pandas sign as it is always coming from the strep or the viral exposure.

A few days before I fell ill he stole my ice-cream, and I just knew he will get sick. He was very sick for a week, and at one point I saw some symptoms of Pandas. Rocking very hard on the rocking chair, but that was lasting for one day only. I tested his writing, (as he can’t write when he starting Pandas,and during he is having a hard time to form numbers and letters) but he did well, I was so obsessed testing him this way that his hands was hurting from all the writing.

I am happy to report that after 5 days he recovered, I do not see any sings of Pandas. He started this squealing  while playing, but I will take that any time.

We went to an 11 days cruise too (I will write about that too in future post) and many people got sick on the ship either with respiratory illness or stomach issues. He just started taking his mushroom about 2 weeks prior to our departure, but he stayed healthy. We went through some hot places and cold rainy places and he stayed healthy the entire time.

Reishi worked for him, and this will stay in his regiment until he gets stronger. The benefits of this supplement are endless, and helps with many different diseases.

Many parents give Reishi to their ASD children because they see a huge difference in their language development, or cognitive skills. Seeing all these improvements in Amin and other children I begin to realize there need to be more research on what kind of medical condition might trigger autism symptoms.

As for many supplements and medications there is a side-effect. Kids just get hungry all the time. Yes, Amin gained weight and it is a problem , but now he is shedding it as well because we are able to go out and exercise. The previous months were extremely hot and our nightly walk  got shorter and our weight get higher. Knowing the side effect which is really manageable, I developed his menu that will serve him well and he will eat much healthier too. Clear most of my free time to spend it with him, redirect him so he will have less time to think about food.

Overall, Reishi Mushroom helped him, and I could not be more thankful to God for directing me to this way


May 11

Mother’s Day 2014

mother-child-sling-17311151Happy mother’s Day to all the caring loving selfless mothers out there.

Happy mother’s day to all the warrior moms with special needs kids.

The ones, who never tired to stay up one more night when the child just simply can’t or won’t sleep.

To those, who fights over and over to get the child into a care of the medical professional who actually care.

To those, who stand up to that medical professional, and won’t allow her child to be pumped with more drugs.

To those, who stay up all night to research what is the best possible treatment for her child, so he/she may advance and reach their full potential.

To those, who fight back tears and appears tough on IEP meetings to get all the services for her kids.

To those, who become  a FBI agent  when it’s come to her child’s safety.

To those, who become a lioness when it comes to protect their child.

Mothers have bottomless hearts, never-ending patience, abundant excuses to forgive, and the best healing hugs anyone can ever ask. Mothers many times get shortchanged, but they never look at it that way, they see it as an investment for the future for their kids.

Celebrate your mothers, and make sure that every day will be a mother’s day. It is not about those flowers,  box of chocolate, or even a special lunch or dinner on mother’s day that matter;  what matters is the beautiful memory growing up with a very special lady that we can call  our mother.

I am fortunate to have a wonderful caring mom, who taught me from a very young age that, regardless what the world say I have to believe in myself, and fight for the cause that matter. She gave me the strength to stand up for myself, to believe in a good cause even when I have no one to share it with, to stand by my children in the most difficult situations and believe in their abilities, and their bright future.

What the word “MOTHER” means to me?…EVERYTHING

Apr 29

Autism Acceptance Month

puzzle-thumbs-up1This month we raised awareness, and we wanted others to accept our family members with autism. It is important to educate the general public about autism, but it is crucial to reach acceptance.

The month is almost over, in some places lots had been done, and hopefully it will continue throughout the years coming. There are places where despite all the awareness efforts, things did not change any or very little improvement can be seen.

I want all of those who had been working very hard in this month to make a difference, to be patient. Great achievements take a lot of effort and more than a month. Consistency is the key, and if we can change a perception of people one at a time, we are on the right track.

Many times we lose sight of the smaller achievements, and we are focusing on the big goal we want to reach. It is nothing wrong to keep our eyes on a greater good, but we should never ignore those small victories we accomplished. Those small successes add up and pave a strong foundation to our cause.

I salute you all who are working with ASD kids/adults, helping them to be a valuable members for their society. I salute you all who worked hard to educate the public about this condition.

I salute you all who reached acceptance of these kids/adults and their families.




Apr 25

CLM Conference

CLM_Logo (640x522)An exciting news for all the CLM followers and users. There will be a conference held in Pennsylvania on June 18th, 2014.

For those who are not familiar with CLM, it means Competent Learner Model.

This model is being used successfully all over the world to help children with all types of disabilities including autism.

The conference will enable us to ;

  • Hear about global CLM implementation projects
  • Network with other leaders and coaches currently implementing CLM
  • Deepen your understanding of CLM instructional design
  • Interact with experts on sustainable implementation practices, elements of instructional design, generative instruction, and fluency building technology
  • To attend this conference live or webcast, registration is required. Please register  by June 6th to ensure your spot on this event.

To find out about the agenda click here.

You will find the link there for registering this event. Don’t miss this opportunity!

Apr 22

Siblings or Victims?

siblingsMany of us have typical children, and we get the questions from family members and strangers, “How do you take care of your “normal” child? Do you have time for her/him? Do you feel guilty not spending enough time? Wouldn’t be better for her/him to stay with a family member who has time and doesn’t have to deal with an ASD child.’

Yes, I heard all these questions and more, and I know others had to deal with ignorant questions and comments too.

One may ask, are these typical siblings  victims of the circumstance. The answer is absolutely NO. No one is a victim here, except the person who continues to ask those foolish ignorant questions.

Those typical siblings will grow up as anyone else would, but these kids might learn more responsibility than others would.These children will develop more compassion than others would if they are not exposed to situations where they can learn it.

Typical children can even became their ASD siblings greatest advocate. I wrote about the benefits of growing up with a special need child. Click here to read about it.

Now, let me address those questions I wrote on the top one by one from my  perspective.

How do you take care of your normal child? This is really a degrading questions. Normal is very subjective. What is normal for me might not be for you simply because of our race, culture or geographic location. A better choice of words would be much more appropriate and less insulting.

Furthermore, a parent always struggles to give  her/his child all the time they need, and even more. It is certainly a natural feeling for a good parent to feel sometimes inadequate, not being able to spend time with either of the children. This question put even more pressure on those stressed out parents. So please stop, and maybe you can bring over a dish for the family so that mom doesn’t have to take time away from either of the kids to cook that day.

Do you have time for him/her?  Yes, I have time for both of my kids, and if I don’t I will make time. My children do not look deprived nor neglected, so these kind of questions are insulting to me. Please mind your own time management and leave other’s time alone.

Do you feel guilty not spending enough time with her/him? If you read these questions, basically they all mean the same. So I am not sure what is the problem with this person who is asking about the same concept over and over again. Comprehension, or not good enough of the vocabulary? So again, I spend time with my kids and I do not have to hover over them always, because everyone needs their own space and time to develop independence.

Wouldn’t be better for her/him to stay with a family member who has time and doesn’t have to deal with an ASD child/”.… Now this  is the cherry on the top of the ignorance. When you always insinuating that the child might feel left out , sending him/her to a family member would definitely make them feel unwanted.

I want to raise children when they feel wanted ,loved close to me and know, regardless what is our current situation we will be together thick or thin. What am I teaching my children if I send them away to a family to look after them, so I can take care of the special-need child?  I want both of my kids to know, there are extreme situations, when  this is necessary , like the time when Amin was in ICU and my daughter was not allowed to come in with me. She stayed with her grandparents while I stayed in the hospital. Even at that time, every day I came to see her, talked to her every hour she called. That is an extreme time, but no other time proved to be this way. We have to teach kids to learn to adapt to anything that may arise, and compromise. Our life is not just compromise, we have a lot of fun, and yes we do give up things at times because something came up. That is life, the things we plan not always work out the way we want it. If we buckle and cry about it, we will raise kids who will never be able to comprise and deal with changes.

For those people who felt sorry for my daughter  that she would never be able to get married because of her brother…Just know she would never want to marry into a family where a special need individual is unwanted or looked down upon. There are plenty of families who are open-minded and that is all we need to know at this time.

In conclusion, if you see your typical sibling child as a victim, she/he will be a victim. If you see them as equals, and see how they grow into a responsible adult, than they always be that way. No, I do not see my daughter as a victim of being a sister of an ASD child. She had learned a lot from this situation and became a strong, compassionate, loving and very intelligent young lady.



Apr 18

Free online Workshop

There is a free online workshop sponsored by Momsfightingautism.com on April 26th and 27th 11am-8pm EST. Here is the time converter link to make sure  you won’t miss this great opportunity .

This two days event will focus on “Thriving from Adolescence to Adulthood with Autism, Preparing for Independence and Growth”.

this is a great subject we all need to focus on, because our kids are growing really fast and we need to prepare for their future. we must do everything in our power to ensure them an easy transition, and to be able to look after them, make decision for them if they are not able.

This event needs pre -.registration. Click on this link below to reserve your spot.



Here is the list for the speakers.

Chantal Sicile-Kira
Chantal Sicile-Kira’s passion for empowering others has led her
to become an award-winning author of five books, speaker, and
leader in the field of adolescence and transition to adulthood. She
has been involved with autism for over 25 years as both a parent
and a professional on both sides of the Atlantic

Greg Zibricky, CFP
With nearly 30 years of experience, Greg is recognized and regarded
for his expertise in the fields of Financial and Special Needs
Planning. He specializes in asset management, lifetime income
strategies, life insurance solutions and trust funding. Greg has in
depth experience working with people’s most difficult life

Tom Ott L.C.S.W.
Tom is a Licensed Clinical Social Worker with over 35 years of
experience in assisting and supporting individuals with
intellectual and developmental disabilities and their families.
Presently he supports people through his individual and group work
in a specialty clinic and he also assists people in making a plan
for their future, based on their desires, situation and options. He
works at a voluntary, non-profit agency and has collaborated with
many other voluntary agencies and governmental partners.

Laura Shumaker
Laura Shumaker is a nationally recognized writer, autism and
disabilities advocate. Her essays have appeared in many places,
including the New York Times, CNN, NPR, and in a popular autism and
disabilities blog for The San Francisco Chronicle. Her oldest son
oldest, Matthew, is the subject of her book.

Nathan D. DeCorpo
Mr. DeCorpo is a practicing attorney and a member of the National
Association of Elder Law Attorneys as well as a Committee Member of
the Trusts and Estates Sections of the Queens and Nassau County Bar
Associations. Mr. DeCorpo is a frequent speaker on issues of asset
preservation and works directly with the Quality Services for the
Autism Community.

Mitchell Weisbrot
Mr. Weisbrot is now a Special Care Planner at CWP and currently one
of only 127 Chartered Special Needs Consultants in the country. He
was presented with the “NY Mets Spirit Award” in
recognition of his efforts to enrich the lives of individuals with
disabilities. Mr. Weisbrot has three sons on the autism spectrum.

Apr 15

Caretakers of an Autistic child

mother-child-hand-630x280I wrote about some very basic traits of an autistic person in my previous post. These might be look simple to you, but it is important for all who are effected by this disorder.

There are some things that I want you to consider when you are dealing with a parent/caretaker who has an autistic individual to care for. 

1).It’s been said that parents/caretakers of and ASD kid are like  combat solders. This description couldn’t be more precise. At least in my life that is certainly the case. As mush as my son improving, we still have our daily challenges and new issues to figure out.

These parents need to be on alert 24/7. They have to watch their kids so they don’t run away, they won’t harm themselves or others at times. They need to develop an escape route if there is a major meltdown, or over-stimulation coming on their way. Help the children with sensory issues that requires intense physical activity. Extreme fatigue from all those sleepless nights. 

2).The planner. A detailed planning for every trip or outings, to cover all issues that may arise. 

3). The patient. Parent/caretakers of an ASD child develop a great amount of patience. They have to, otherwise life would be more difficult.  It is not unheard of when these adults can watch the same movie, sing the same song, draw the same picture over and over again with a smile on their face.

4).The medical professional. Many of the children with ASD have medical problems. Some more serious than others. The parent need to learn how to respond to those emergencies, how to take care of the kids until the ambulance will arrive, or be able to take them to the hospital. Learning CPR is a must, learning about the medications they take is essential, right down to all the side effects. How to respond to certain health issues in  not the most conventional way. Learning the effect of all the medications and supplements. Preventing illnesses and accidents as much as possible.

5) The dietitian. This skill had to be learned too. Our kids have lots of environmental and food allergies. We had to research and relearn to cook, and make all the fast-foods they would like from scratch. We learn to make flour, bread, hide vegetables in their food. Investigate the source of the food, to get the cleanest and a most nutritional value.

6). The farmer.  Oh yes, this is one that takes some time to get used to, but eventually it comes to us very easily. 

We learn to grow out food, so we can give our kids organic, without harmful pesticides or even worse GMO food. Some of us going as far as getting chicken and raising them for food.  

7).The Investigator. Many times we are forced to explore the source of supplements, foods,  the background of those who are teaching and giving therapy to our kids. We look into environmental factors, toxins that surround us at home and outside of our houses. Find the best and most trustworthy places for our kids takes a lot of looking into matters, and we sure develop a skill of an investigator.

8).The teacher and the therapist. We learn from our kids professional teachers and therapist, so we can carry out all that teaching at home too. Learning new technical words, abbreviations, taking data.

9). The Financial planner. This one is another difficult skill, but we have no choice but to learn it. In order to ensure a better future for our kids we have to be smart about financial planning. This is certainly my least favorite subject.

10) The researcher. Caretakers/parents have to look what resources and help are available for their kids through the state, or even private. This is not an easy job, when you have to be in touch and deal with a lot of bureaucracy.

Figure out the way how to get help that is quality and safe, had never been an easy task.

11).The Psychologist. Helping him/herself to come to terms with autism in a family, explain  this to the rest of the family. Consulting siblings and immediate family members, juggling with everyone’s emotions as well as your own.

These are only few things that parents with autistic children have to adopt to. We do it  gladly, but it would be certainly easier if others would take  it into consideration that our lives are not ordinary like the ones with typical kids. We have to be more involved in many different ways. So please, if that parent doesn’t answer your email right away, or answer your call or text, give them a break and know they would be more than happy to chit-chat with you, but they have much more serious issues to deal with at the present.

Please know if she /he is yawning while you are conversing with them, it is not because they think you are boring, (sometimes it might be the case) but they might not had a good sleep for days or weeks or even months. 

If they don’t accept your invitation for your dinner/pool party over and over again, that might be because the child’s schedule is in conflict.

If they are wearing sunglasses even on a cloudy day, it is not because they want to look cool, they might just be hiding they bloodshot eyes from sleep-deprivation or crying.

We ask you to give us a benefit of a doubt before you start judging us or labeling us.


Apr 12

9 Points I Want You to Know About Autism

Autism-Acceptance-001You need to be living in a deserted island in order to not know about autism. It is on every media outlet, and right now this month is autism awareness month, so you get a double dose about this subject.

We hear about acceptance, red flags, struggles, milestones, celebrations. Those are all our every day life’s occurrences, just like when you have a typical kid.

Most of us have  neurotypical child, so we all know what we do for them, what we talk about , and the same goes for the kids with autism, but it might be more detailed and a bit more deeper.

Still, we have a long way to go to see more defined acceptance and understanding. So here are a few tips for those who are not living with and ASD child, but want to know more about them.

1).The ASD child might not be verbal, meaning doesn’t talk, or have no functional speech, but they still understand what you are saying. So watch your words, because words can hurt just as much as physical harm. We should all be accountable of what, when or how we say  things to these individuals, and their caretakers.

2).Also, try to be respectful, because there is no reason not to be. Here is a main reason why we should give them respect…these kids have to make a huge effort to learn things that it comes to the rest of us  naturally. Yet they still manage to get up every morning and go on with their lives,even put a smile on their face. Lets face it, they work much harder than you and me together.

3).When you talk to them talk to them as you would to anyone else. They do understand, and they might even reply if they are verbal. Give them a chance and treat them as your equal.

4). Please don’t get hang up on the famous “eye contact” subject. If someone is looking at you it doesn’t mean they listen to you, or if they don’t look at you, they might be very well listening. Trust me, been there done that. Sometimes I am annoyed by certain people when they talk to me. I look at them, but learned to tune them out and have no clue what they saying nor do I have any interest of what they are telling me. If you wonder, NO, I am not autistic just a typical human being.  Now, these kids  may not look at you, but they hear and comprehend everything you have to tell them. So don’t get offended if they don’t look at you.

5). If you witness one of their meltdowns, don’t jump into conclusions. We all have those moments when we want to scream and stomp and cry. Sometimes we do it, in private, or have a good cry, or we call someone to vent. These kids don’t know how to cope when they are overwhelmed, and many times they can not verbalize their complex feelings. These individuals are the most honest, transparent human beings you will ever meet. They will never hide what they feel, nor will they disguise it like us.One of the amazing qualities they have. that you will  never have to worry about mind games when you are dealing with autistic kids/adults. So how cool is that. Just knowing this should be enough of an excuse to cut them some slacks and overlook their tantrum. That would be a great help for the parents and caretakers too. One less stress to deal with, they don’t have to endure the stares, and ignorant comments.

6).When you know someone with this diagnosis, don’t condemn them or treat them as such. Look at their ability not their disability. Trust me, when you really get to know them, you will be so surprised how much gift these kids can offer to the world.

7). Look at these kids/adults as you would any typical individuals. They have their own unique passion, interest of  many things, or just one area that gives them fascination. They have dreams and goals they want to achieve. Help them to fulfill their life goals by respecting them, and encourage them.

8).Forgive them and find excuses for their shortcomings. We all have faults, we just hide it better.

9).Before you judge, learn more about autism, and accept that not everyone is doing things the same way, and not everyone progresses the same rate. We are used to a certain social norm, which we created for ourselves, we need to be open-minded and allow others to create their own norms.

This year, this month is an autism acceptance month. Please accept our kids as they are, and pray that they will reach their full potential.

Thank you, from a bottom of my heart.

Amin’s mom

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